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Markowitz B, de Sequeira S, Najam A, Pritlove C, Greenberg D, Greenberg M, Chan CM, Lakhanpal G, Jagadeesh S, Mukerji G, Shulman R, Witteman HO, Yu CH, Booth GL, Parsons JA, The T1ME Patient Advisory Committee
Beyond Hemoglobin A1c—Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study
Beyond A1c: What outcomes matter to persons living with type 1 diabetes when it comes to adopting digital health interventions for self-management support
Benjamin Markowitz;
Stephanie de Sequeira;
Adhiyat Najam;
Cheryl Pritlove;
Dana Greenberg;
Marley Greenberg;
Chee-Mei Chan;
Gurpreet Lakhanpal;
Samyukta Jagadeesh;
Geetha Mukerji;
Rayzel Shulman;
Holly O. Witteman;
Catherine H. Yu;
Gillian L. Booth;
Janet A. Parsons;
The T1ME Patient Advisory Committee
ABSTRACT
Background:
Type 1 diabetes is a demanding chronic condition that requires diligent blood glucose monitoring and timely insulin administration by patients who must integrate self-management into their daily lives.
Objective:
To better understand what outcome measures are important to individuals living with Type 1 diabetes (T1D) in Ontario, Canada to help inform the development of the Type 1 diabetes Virtual Self-management Education and Support (T1ME) trial.
Methods:
A qualitative approach was used, in which we conducted six focus groups with a total of 24 adult participants living with T1D (age 18 to > 65) in Ontario. Each focus group was semi-structured in nature; participants were encouraged to talk openly about their experiences with T1D self-management and provide their perspectives on more focused topics like technology and relationships with healthcare providers.
Results:
An interpretive analysis helped us devise a framework for our results that centered around six main discussion themes: 1) adapting self-management to meet evolving needs; 2) looking ‘beyond A1c’ towards more personalized indicators of glycemic management; 3) the benefits and challenges of adopting new T1D technology; 4) establishing trusting relationships with diabetes care providers; 5) perceived benefits of peer support; and 6) perspectives on virtual care: pre- and post-COVID-19.
Conclusions:
Our goal is for these findings help facilitate the development of patient-oriented outcome measures that are in line with the unique needs and preferences of T1D patients in this new, more virtual landscape of clinical care, education and self-management support.
Citation
Please cite as:
Markowitz B, de Sequeira S, Najam A, Pritlove C, Greenberg D, Greenberg M, Chan CM, Lakhanpal G, Jagadeesh S, Mukerji G, Shulman R, Witteman HO, Yu CH, Booth GL, Parsons JA, The T1ME Patient Advisory Committee
Beyond Hemoglobin A1c—Outcomes That Matter to Individuals With Type 1 Diabetes in Adopting Digital Health Interventions for Self-Management Support: Qualitative Study