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Accepted for/Published in: JMIR Human Factors

Date Submitted: Nov 30, 2023
Date Accepted: Oct 6, 2024

The final, peer-reviewed published version of this preprint can be found here:

Collecting Feedback From Neurologists and Patients to Guide Development of a Parkinson Disease App (DigiPark): Qualitative, Noninterventional Study

Duracinsky M, Brown Hajdukova E, Peretz F, Sauzin J, Gouider-Khouja N, Atlani C, Dalili D

Collecting Feedback From Neurologists and Patients to Guide Development of a Parkinson Disease App (DigiPark): Qualitative, Noninterventional Study

JMIR Hum Factors 2024;11:e55032

DOI: 10.2196/55032

PMID: 39740139

PMCID: 11706441

DigiPark Application: Collecting Feedback from Both Neurologists and Patients to Guide Development

  • Martin Duracinsky; 
  • Eva Brown Hajdukova; 
  • Fabienne Peretz; 
  • Julie Sauzin; 
  • Neziha Gouider-Khouja; 
  • Caroline Atlani; 
  • Djamchid Dalili

ABSTRACT

Background:

Parkinson's Disease (PD) is a worldwide fast-growing progressive neurodegenerative condition. Its multifaceted clinical presentation includes a wide range of motor and non-motor symptoms. Smartphones present a potential solution to better monitor and subsequently alleviate PD symptoms.

Objective:

To explore the impact of neurologist-patient collaborative feedback on the design and functionality of a new smartphone application in PD, DigiPark.

Methods:

This qualitative, non-interventional study gathered data through two primary methods First, by conducting interviews with nine neurologists, and second, through a usability test (UT) including five patients with PD (PWPD) as part of the development process for a new smartphone application (app).

Results:

The neurologists affirmed the necessity for a patient-centered app, highlighting the complexities of PD management. They advocated for personalized app functionalities to improve patients' quality of life and emphasized the need for enhanced patient-provider communication. Feedback from the UT indicated a preference for a clear, simple user interface, and elucidation of the app's benefits. Concerns about the app's time demands and the complexity of certain features like medication management were expressed. Furthermore, PWPD consistently showed interest in features that could track and monitor their progress over time. This highlights the need to include clear benefits within the app to maintain user engagement and commitment.

Conclusions:

Collaborative efforts in shaping the app cater to genuine PD management needs. Future clinical trial inclusion can further validate the efficacy of DigiPark. Clinical Trial: n/a


 Citation

Please cite as:

Duracinsky M, Brown Hajdukova E, Peretz F, Sauzin J, Gouider-Khouja N, Atlani C, Dalili D

Collecting Feedback From Neurologists and Patients to Guide Development of a Parkinson Disease App (DigiPark): Qualitative, Noninterventional Study

JMIR Hum Factors 2024;11:e55032

DOI: 10.2196/55032

PMID: 39740139

PMCID: 11706441

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