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Accepted for/Published in: JMIR Research Protocols

Date Submitted: Nov 28, 2023
Date Accepted: Jun 28, 2024

The final, peer-reviewed published version of this preprint can be found here:

Parent Education and Counseling (PairEd-C) Intervention to Improve Family-Centered Care: Protocol for a Prospective Acceptability Study Using the Theoretical Framework of Acceptability

Deribe L, Addissie A, Girma E, Gidey A, Teferaa S, Lindström N

Parent Education and Counseling (PairEd-C) Intervention to Improve Family-Centered Care: Protocol for a Prospective Acceptability Study Using the Theoretical Framework of Acceptability

JMIR Res Protoc 2024;13:e54914

DOI: 10.2196/54914

PMID: 39365661

PMCID: 11489800

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Prospective acceptability of PARent EDucation and Counseling (PairEd-C) intervention to improve family centered care service using Theoretical Framework of Acceptability. A study Protocol

  • Leul Deribe; 
  • Adamu Addissie; 
  • Eshetu Girma; 
  • Abdulkadir Gidey; 
  • Solomon Teferaa; 
  • Nataliya Lindström

ABSTRACT

Background:

Family-centered care (FCC) is an intervention approach that is based on respectful relationship between family and health care providers to ensure the health and well-being of children and their families. Even though health care providers have better perception regarding FCC, the level of its implementation was found to be low. Reasons for low implementation includes limited understanding, lack of training, lack of implementation guideline and tools to support its implementation. Thus, we developed parent education and counseling (PairEd-C) intervention to improve FCC in pediatric oncology setting and assess its acceptability.

Objective:

The objective of this study is to asses prospective acceptability of parent education and counseling (PairEd-C) intervention using theoretical framework of acceptability (TFA) at pediatric oncology of tertiary hospital in Ethiopia.

Methods:

The study will be conducted using exploratory qualitative study design. A total of 26 to 31 participants will be anticipated to be recruited for the in-depth interview. The study participants will be health service leaders working on child cancer, health care providers, social workers and parents of children with cancer. The study will assess acceptability of the PairEd-C intervention with the main components of providing training for health care team, providing education for parents, improving parents’ capacity to attend, monitor and utilization of intervention, and arranging discussion among parents. Data will be analyzed using deductive thematic coding with a framework analysis technique based on the seven constructs of TFA. Atlas ti. Version 9 will be used to assist data analysis.

Results:

Funding and ethical clearance for conducting the study was already obtained.

Conclusions:

This acceptability study is expected to show as the designed intervention will be acceptable by study participant and we will obtain an important finding that will be used to improve the intervention before progressing to the next step of our project.


 Citation

Please cite as:

Deribe L, Addissie A, Girma E, Gidey A, Teferaa S, Lindström N

Parent Education and Counseling (PairEd-C) Intervention to Improve Family-Centered Care: Protocol for a Prospective Acceptability Study Using the Theoretical Framework of Acceptability

JMIR Res Protoc 2024;13:e54914

DOI: 10.2196/54914

PMID: 39365661

PMCID: 11489800

Per the author's request the PDF is not available.