Accepted for/Published in: JMIR Dermatology
Date Submitted: Nov 21, 2023
Date Accepted: Apr 21, 2024
Development, feasibility, and acceptability of the electronic Patient Benefit Index for Psoriasis in clinical practice
ABSTRACT
Background:
Patient-reported outcomes are relevant in clinical practice showing patient benefits, supporting clinicians’ decision making and contributing to the delivery of high standards of care. Digital monitoring of PROs is still rare. The Patient Benefit Index (PBI) measures benefits and goals from patients’ views and may be relevant for regular documentation and for shared decision making.
Objective:
We aimed to develop electronic versions of the PBI to examine their feasibility and acceptability in clinical practice for patients with psoriasis.
Methods:
We developed an app and a web-version of the existing, valid PBI using focus groups and cognitive debriefings with patients before conducting a quantitative survey on its feasibility and acceptability. Conduction took part in an outpatient dermatology care unit in Germany. Descriptive and subgroup analyses were conducted.
Results:
139 patients completed the electronic PBIs and took part in the survey. The electronic PBI was understandable (92.8–98.6%) and feasible, e.g., easy to read (97.1%) and simple to handle (98.5%). Acceptability was also high, e.g.: Patients can imagine using and discussing the electronic PBI data in practice (65.5%) and documenting it regularly (63.3%). They believe it could support treatment decisions (84.9%) and improve communication with their physician (81.3%). They can imagine filling in electronic questionnaires regularly (84.9%) even preferring electronic over paper versions (81.2%). Older and less educated people show less feasibility, but the latter expected the relationship with their physician to improve and would be more willing to invest time or effort.
Conclusions:
The app and web-version of the PBI are usable and acceptable for patients offering comprehensive documentation and patient participation in practice. An implementation strategy should consider patient needs, their barriers, and facilitators, but also physicians’ attitudes and requirements from the healthcare system.
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