JMIR Publications

ABSTRACT

A digital diary in form of a mobile messenger service offers a novel method for data collection in cancer research. Little is known about the things to consider when using this data collection method in clinical research for oncology patients. In this viewpoint paper we discuss our lessons learned from using a qualitative digital diary method via mobile messenger service for data collection in oncology care. The lessons learned focus on three main topics: (1) data quality, (2) practical aspects and (3) data protection. We hope to provide other researchers with useful information when considering this method for their research with patients. (1) In this paper we argue that the interactive nature of a digital diary via a messenger service is very well suited for the phenomenological approach and produces high quality data. (2) We also discuss practical issues of data collection with a mobile messenger service including the participant and researcher interaction. (3) We highlight corresponding aspects around technicalities, particularly on data security. Our views on data privacy and information security are summarized in a comprehensive checklist to inform fellow researchers on the selection of a suitable messenger service for different scenarios. In our opinion, a digital diary via a mobile messenger service can provide high quality data almost in real-time and close to participants’ daily lives. However, some considerations must be made to ensure that patient data is sufficiently protected. Our lessons learned can guide future qualitative research using this relatively novel method for data collection in cancer research.