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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Apr 6, 2023
Date Accepted: Jul 20, 2023

The final, peer-reviewed published version of this preprint can be found here:

Ethical Imperatives for Working With Diverse Populations in Digital Research

Herington J, Connelly K, Illes J

Ethical Imperatives for Working With Diverse Populations in Digital Research

J Med Internet Res 2023;25:e47884

DOI: 10.2196/47884

PMID: 37721792

PMCID: 10546274

Ethical Imperatives for Working with Diverse Populations in Digital Research

  • Jonathan Herington; 
  • Kay Connelly; 
  • Judy Illes

ABSTRACT

Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models of research ethics do not offer adequate protection in the context of the diversity imperative. To meet requirements of justice and inclusivity in digital research, methods will benefit from a re-orientation towards more participatory practices.


 Citation

Please cite as:

Herington J, Connelly K, Illes J

Ethical Imperatives for Working With Diverse Populations in Digital Research

J Med Internet Res 2023;25:e47884

DOI: 10.2196/47884

PMID: 37721792

PMCID: 10546274

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