Accepted for/Published in: JMIR Public Health and Surveillance
Date Submitted: Mar 9, 2023
Open Peer Review Period: Mar 9, 2023 - May 4, 2023
Date Accepted: Mar 11, 2024
(closed for review but you can still tweet)
Giving a voice to adults with COVID-19: An analysis of open-ended comments from smell longhaulers and non-longhaulers
ABSTRACT
Background:
Smell disorders are commonly reported with COVID-19 infection. Some patients show prolonged smell-related issues, even after the respiratory symptoms are resolved. To explore the concerns of patients, and to provide an overview for each specific smell disorder, we explored a longitudinal survey that was administered online, and contained self-reports on the changes of smell that participants (n=1560) experienced at two time points.
Objective:
Participants who still suffered from smell disorders at the second time point, hence named ‘longhaulers’, were compared to those who were not, hence named ‘non-longhaulers’.
Methods:
Specifically, three aims were pursued in this study. First, to classify smell disorders based on the participants’ self-reports. Second, to classify the sentiment of each self-report using a machine learning approach, and third, to find specific keywords that best describe the smell dysfunction in those self-reports.
Results:
We found that the prevalence of parosmia and hyposmia was higher in longhaulers than in non-longhaulers. Furthermore, the results suggest that longhaulers stated self-reports with more negative sentiment than non-longhaulers. Finally, we found specific keywords that were more typical for either longhaulers compared to non-longhaulers.
Conclusions:
Taken together, our work shows consistent findings with previous studies, while at the same time, provides new insights for future studies investigating smell disorders.
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Copyright
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