Accepted for/Published in: JMIR Aging
Date Submitted: Jul 12, 2022
Date Accepted: Sep 22, 2022
Date Submitted to PubMed: Sep 23, 2022
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Dementia care partners and others highly value iGeriCare e-learning: Pilot evaluation using the IAM4all
ABSTRACT
Background:
Care partners of people living with dementia may benefit from online education. We developed iGeriCare, an award-winning internet-based platform with 12 multimedia e-learning lessons about dementia.
Objective:
Our objective was to evaluate users’ perceptions of impact.
Methods:
From March 17, 2021-May 16, 2022, data were collected upon lesson completion. We used the content-validated Information Assessment Method for patients and the public (IAM4all) adapted for dementia care partners. The IAM4all questionnaire assesses outcomes of online consumer health information. Responses were collected using SurveyMonkey.
Results:
409 responses were collected, with a 95% survey completion rate. 44% identified as a family or friend care partner, and 21% as an individual concerned they may have mild cognitive impairment (MCI) or dementia. 93% identified the lesson as relevant (29%) or very relevant (64%). 99% understood the lesson well or very well. Respondents were motivated to learn more (58%), taught something new (54%), validated what they do (53%), reassured (47%), or refreshed their memory (38%). 98% said they would use the information: in particular, to better understand something (71%), discuss the information with someone else (52%), do things differently (34%), or do something (31%). Most free text feedback comments reported a positive sentiment.
Conclusions:
Users identified iGeriCare as relevant, beneficial, and that they would use the information. To our knowledge, this is the first time the IAM4all has been used to assess patient and caregiver feedback on internet-based dementia education resources. A randomized controlled trial to study feasibility and impact on caregiver knowledge, self-efficacy, and burden is planned.
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