Accepted for/Published in: Journal of Participatory Medicine
Date Submitted: Mar 17, 2022
Open Peer Review Period: Mar 17, 2022 - May 12, 2022
Date Accepted: Nov 15, 2022
(closed for review but you can still tweet)
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Virtual Participatory Design of a Transgender Health Information Resource
ABSTRACT
Background:
Using participatory design principles, we created an information resource for the transgender and gender diverse community. The resource was informed by the needs of the transgender and gender diverse community with input from experts in information science and transgender health, and our community advisory board. The resource is delivered through a mobile application; given the current near ubiquitous use of smartphones as a method of accessing the internet among the US population. The resource application provides tailored health and wellness information and was designed to enhance adoption, dissemination, and sustainability.
Objective:
Health research - including development of digital health tools - has been forced to adapt to the virtual environment due to COVID-19. The purpose of this paper is to describe virtual participatory design methods used to develop the Transgender Health Information Resource digital health tool.
Methods:
A three-stage virtual participatory design approach was implemented using online collaborative tools including Zoom, Mural, REDCap and Justinmind. This approach maintained the benefits and integrity of traditional in-person design sessions, mitigated any deficits, and exploited previously unconsidered benefits of virtual methods.
Results:
The first design session, consisting of 4 participant co-designers, resulted in 301 interactions, 79 verbal comments and 222 virtual manipulations which propelled the co-design process and decision making.
Conclusions:
Virtual participatory design can elicit input and decisions from co-designers to develop a health information resource, including a user interface. Co-designers were routinely highly engaged. The virtual approach to participatory design, which included online collaboration tools, was efficient and a feasible methodological approach
Citation
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.