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Perales-Puchalt J, Acosta-Rullán M, Ramírez-Mantilla M, Espinoza-Kissell P, Vidoni E, Niedens M, Ellerbeck E, Hinton L, Loera L, Ramirez S, Lara E, Watts A, Williams K, Resendez J, Burns J
A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study
A Text Message Intervention to Support Latino Dementia Family Caregivers (CuidaTEXT): Development and Usability Study
Jaime Perales-Puchalt;
Mariola Acosta-Rullán;
Mariana Ramírez-Mantilla;
Paul Espinoza-Kissell;
Eric Vidoni;
Michelle Niedens;
Edward Ellerbeck;
Ladson Hinton;
Linda Loera;
Susana Ramirez;
Esther Lara;
Amber Watts;
Kristine Williams;
Jason Resendez;
Jeffrey Burns
ABSTRACT
Background:
Latino family caregivers of individuals with dementia face many barriers to caregiver support access. Interventions that alleviate these barriers a desperately needed.
Objective:
To describe the development of CuidaTEXT: a tailored text message intervention to support Latino dementia family caregivers.
Methods:
CuidaTEXT is informed by the Stress Process Framework and Social Cognitive Theory. We developed and refined CuidaTEXT using a mixed-method approach that included thematic analysis and descriptive statistics. We followed six user-centered design stages, including the selection of design principles, software vendor collaboration, evidence-based foundation, caregiver and research/clinical advisory board guidance, sketching and prototyping, and usability testing among five Latino caregivers.
Results:
CuidaTEXT is a bilingual 6-month long intervention tailored to caregiver needs that includes: 1) 1-3 daily automatic messages (n=244) about logistics, dementia education, self-care, social support, end-of-life, care of the person with dementia, behavioral symptoms and problem-solving strategies; 2) 783 keyword-driven text messages for further help with the above topics; 3) live chat interaction with a coach for further help; 4) a 19-page reference booklet summarizing the purpose and functions of the intervention. CuidaTEXT’s prototype scored 97 out of 100 in the System Usability Scale.
Conclusions:
CuidaTEXT’s prototype demonstrated high usability among Latino caregivers. CuidaTEXT’s feasibility is ready to be tested. Clinical Trial: Trial Registration: ClinicalTrials.gov NCT04316104
Citation
Please cite as:
Perales-Puchalt J, Acosta-Rullán M, Ramírez-Mantilla M, Espinoza-Kissell P, Vidoni E, Niedens M, Ellerbeck E, Hinton L, Loera L, Ramirez S, Lara E, Watts A, Williams K, Resendez J, Burns J
A Text Messaging Intervention to Support Latinx Family Caregivers of Individuals With Dementia (CuidaTEXT): Development and Usability Study