Accepted for/Published in: JMIR Research Protocols
Date Submitted: Sep 28, 2021
Date Accepted: Apr 22, 2022
Self-Management App for People Living with Mild Dementia: Protocol for a RE-AIM feasibility study of the PRIDE web-based intervention
ABSTRACT
Background:
With the prevalence of dementia rapidly increasing in the UK and beyond, the emotional, social and economic burden on individuals, families and healthcare services continue to rise. Now more than ever, interventions that enable people living with dementia to better manage their condition and achieve a good quality of life are needed.
Objective:
The PRIDE-app is an online handbook which aims to promote positive lifestyle changes and enable those with mild dementia to enhance their independence and enjoy a better quality of life.
Methods:
A pre-post study design incorporating the RE-AIM framework. We will utilise up to 6 NHS Trusts as research sites, Join Dementia Research, and accept self-referrals to recruit 60 – 90 people living with mild dementia. Participants will complete the PRIDE-app social intervention over an 8-week period with support from a Dementia Advisor facilitator. Measures exploring mood, physical wellbeing and quality of life will be collected at baseline and follow-ups at 3 and 6 months. Participants, facilitators and NHS service staff will be invited to complete interviews shortly after the intervention phase.
Results:
Analysis of the quantitative measures will explore of the PRIDE-app impact on participants’ independence, mood and quality of life. Interview data will discuss participant experiences, whether the PRIDE-app can have a positive effect in their lives, and if it has the potential to be successfully implemented and maintained into dementia services.
Conclusions:
This study will show the potential reach, effectiveness and adoption of the PRIDE-app intervention in the lives of people living with mild dementia. Findings from this study will inform future research of the PRIDE-app and any further developments to improve its effectiveness.
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