Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Sep 2, 2021
Date Accepted: Feb 23, 2022
Publicly available interactive web-based tools to support advance care planning: a systematic review
ABSTRACT
Background:
Background:
There is an increasing number of interactive, web-based advance care planning (ACP) support tools, i.e. online aids in any format that encourage reflection, communication and processing of information, publicly available, most of which cannot be found in peer-reviewed literature.
Objective:
Objective:
To describe the characteristics and quality of content of these ACP support tools and investigate whether and how they are evaluated.
Methods:
Methods:
We systematically searched online grey literature databases, Google and app stores and consulted experts using these eligibility criteria: online, designed for the general population, accessible to everyone, interactive i.e. encouraging reflection, communication and processing of information, and in English or Dutch. Quality of content was evaluated using the QUEST Tool (score 0-28 - higher score is a better quality). This systematic review was registered in PROSPERO
Results:
Results:
Thirty tools met the eligibility criteria: 15 websites, ten online portals, three apps, and two with a combination of formats. Most (n=24) mentioned a clear aim: to support reflection and/or communication (n=7), to support people in making decisions (n=8) or to document decisions (n=7), and two aimed to achieve all these aims. Seven tools provided information on the development: all were developed in collaboration with healthcare professionals and three also with end-users. quality scores ranged between 11 and 28, with most of the lower-scoring tools not referring to information sources.
Conclusions:
Conclusion: There is a variety of ACP support tools available online, varying in quality of content. For the future, users should be involved in the development process of ACP support tools and the content should be substantiated by scientific evidence.
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