Maintenance Notice

Due to necessary scheduled maintenance, the JMIR Publications website will be unavailable from Wednesday, July 01, 2020 at 8:00 PM to 10:00 PM EST. We apologize in advance for any inconvenience this may cause you.

Who will be affected?

Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Feb 22, 2021
Date Accepted: Jul 5, 2021

The final, peer-reviewed published version of this preprint can be found here:

Using an Individual-Centered Approach to Gain Insights From Wearable Data in the Quantified Flu Platform: Netnography Study

Greshake Tzovaras B, Senabre Hidalgo E, Alexiou K, Baldy L, Morane B, Bussod I, Fribourg M, Wac K, Wolf G, Ball M

Using an Individual-Centered Approach to Gain Insights From Wearable Data in the Quantified Flu Platform: Netnography Study

J Med Internet Res 2021;23(9):e28116

DOI: 10.2196/28116

PMID: 34505836

PMCID: 8463949

Quantified Flu: an individual-centered approach to gaining sickness-related insights from wearable data

  • Bastian Greshake Tzovaras; 
  • Enric Senabre Hidalgo; 
  • Karolina Alexiou; 
  • Lukaz Baldy; 
  • Basile Morane; 
  • Ilona Bussod; 
  • Melvin Fribourg; 
  • Katarzyna Wac; 
  • Gary Wolf; 
  • Mad Ball

ABSTRACT

Background:

Wearables have been used widely for monitoring health in general and recent research results show that they can be used for predicting infections based on physiological symptoms. So far, the evidence has been generated in large, population-based settings. In contrast, the Quantified Self and Personal Science communities are comprised of people interested in learning about themselves individually using their own data, often gathered via wearable devices.

Objective:

We explore how a co-creation process involving a heterogeneous community of personal science practitioners can develop a collective self-tracking system to monitor symptoms of infection alongside wearable sensor data.

Methods:

We engaged into a co-creation and design process with an existing community of personal science practitioners, jointly developing a working prototype of an online tool to perform symptom tracking. In addition to the iterative creation of the prototype (started on March 16, 2020), we performed a netnographic analysis, investigating the process of how this prototype was created in a decentralized and iterative fashion.

Results:

The Quantified Flu prototype allows users to perform daily symptom reporting and is capable of visualizing those symptom reports on a timeline together with the resting heart rate, body temperature and respiratory rate as measured by wearable devices. We observe a high level of engagement, with over half of the 92 users that engaged in the symptom tracking becoming regular users, reporting over three months of data each. Furthermore, our netnographic analysis highlights how the current Quantified Flu prototype is a result of an interactive and continuous co-creation process in which new prototype releases spark further discussions of features and vice versa.

Conclusions:

As shown by the high level of user engagement and iterative development, an open co-creation process can be successfully used to develop a tool that is tailored to individual needs, decreasing dropout rates.


 Citation

Please cite as:

Greshake Tzovaras B, Senabre Hidalgo E, Alexiou K, Baldy L, Morane B, Bussod I, Fribourg M, Wac K, Wolf G, Ball M

Using an Individual-Centered Approach to Gain Insights From Wearable Data in the Quantified Flu Platform: Netnography Study

J Med Internet Res 2021;23(9):e28116

DOI: 10.2196/28116

PMID: 34505836

PMCID: 8463949

Download PDF


Request queued. Please wait while the file is being generated. It may take some time.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.