Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Jan 10, 2021
Date Accepted: May 6, 2021
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Codesigning and pilot testing a lifestyle-focused text message intervention for women after breast cancer treatment: A mixed-methods study
ABSTRACT
Background:
Breast cancer is the most common cancer among women worldwide. Recovery from breast cancer treatment can be mentally and physically challenging. Text message programs offer a novel way to provide health information and support but few programs are co-designed with consumer representatives.
Objective:
This study aimed to co-design and pilot test a lifestyle-focused text message program to support women’s mental and physical health after treatment.
Methods:
Iterative mixed-methods three-step process: 1) co-design workshop with consumers, health professionals/researchers with drafting text messages; 2) consumer and health professionals/researchers evaluation plus readability (Flesch-Kincaid score) and 3) pilot testing of message delivery software. For the consumer and health professional review, content was scored (5-point Likert scale) for ease-of-understanding, usefulness and appropriateness and additional free-text responses and semi-structured interviews were conducted
Results:
In Step 1, co-designed text messages (n=189) were semi-personalised and main content themes were: i) physical activity and healthy eating, ii) medications and side effects, iii) mental health and iv) general breast cancer information. In Step 2, consumers (n=14) and health professionals/researchers (n=14) provided 870 reviews of 189 messages and found most messages easy-to-understand (92%), useful (86%) and appropriate (84%) and most (156/189; 83%). However, consumers rated 50 messages differently to health professionals/researchers. Based on evaluations/feedback, 71 messages deleted, 69 edited and 12 new messages were created related to fatigue, self-care and cognition. The final 130 text messages had a mean (SD) Flesch-Kincaid 7.12 (2.8) grade level and 68.9 (15.5) ease-of-reading score representing “standard” reading ease. In Step 3, participants successfully received 16 text messages with no technical issues.
Conclusions:
Co-designing and evaluating a bank of evidence-based lifestyle-focused text messages with breast cancer survivors, health professionals and researchers was feasible. Consumer evaluations differed from health professionals/researchers and significantly improved the message quality. Clinical Trial: N/A
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