Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Sep 4, 2020
Date Accepted: Apr 3, 2021
Patient rationales against the use of patient accessible health records (PAEHR): A qualitative study
ABSTRACT
Background:
Patient-accessible electronic health records (PAEHR) enable patients to access their health records through a secure connection over the internet. Though previous studies of patients’ experience with this kind of service has shown that the majority of users are positive towards the PAEHR, little is known about why patients do not to use the PAEHR.
Objective:
To explore patients’ rationales for not embracing online access to health records_
Methods:
A qualitative study, including 40 interviews with patients, conducted in a department of internal medicine in a Norwegian hospital in 2018/19.
Results:
We identified nine different rationales that study participants had against the use of PAEHR. When patients explained why they might not use PAEHR, they variously said that they found the PAEHR unnecessary, impersonal, foreign, misery oriented, fear provoking, energy demanding, privacy infringing and cumbersome_
Conclusions:
It is often assumed that the barriers against PAEHR use are mostly practical (such as lack of access to hardware and internet connection). In this study, we show that patients have many good reasons not to celebrate or adopt this kind of solution_
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