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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Aug 3, 2020
Date Accepted: Sep 13, 2020

The final, peer-reviewed published version of this preprint can be found here:

A Data Visualization and Dissemination Resource to Support HIV Prevention and Care at the Local Level: Analysis and Uses of the AIDSVu Public Data Resource

Sullivan PS, Woodyatt C, Koski C, Pembleton E, McGuinness P, Taussig J, Ricca A, Luisi N, Mokotoff E, Benbow N, Castel AD, Do AN, Valdiserri RO, Bradley H, Jaggi C, O'Farrell D, Filipowicz R, Siegler AJ, Curran J, Sanchez TH

A Data Visualization and Dissemination Resource to Support HIV Prevention and Care at the Local Level: Analysis and Uses of the AIDSVu Public Data Resource

J Med Internet Res 2020;22(10):e23173

DOI: 10.2196/23173

PMID: 33095177

PMCID: 7654504

AIDSVu: A data visualization and dissemination resource to support HIV prevention and care at the local level

  • Patrick Sean Sullivan; 
  • Cory Woodyatt; 
  • Chelsea Koski; 
  • Elizabeth Pembleton; 
  • Pema McGuinness; 
  • Jennifer Taussig; 
  • Alexandra Ricca; 
  • Nicole Luisi; 
  • Eve Mokotoff; 
  • Nanette Benbow; 
  • Amanda D Castel; 
  • Ann N Do; 
  • Ronald O Valdiserri; 
  • Heather Bradley; 
  • Chandni Jaggi; 
  • Danny O'Farrell; 
  • Rebecca Filipowicz; 
  • Aaron J Siegler; 
  • James Curran; 
  • Travis H Sanchez

ABSTRACT

Background:

AIDSVu is a public resource for visualizing HIV surveillance data and other population-based data relevant to HIV prevention, care, policy, and impact assessment.

Objective:

The site, AIDSVu.org, aims to make data about the US HIV epidemic widely available, easily accessible, and locally relevant to inform public health decision-making.

Methods:

AIDSVu develops data visualizations, maps and downloadable data sets using data from HIV surveillance systems, other population-based data sources (e.g., Census, national probability surveys), and other data developed specifically for display and dissemination through the website (e.g., PrEP prescription data). Other types of content are developed to translate surveillance data into summarized content for diverse audiences using infographic panels, interactive maps, local and state fact sheets, and narrative blog posts.

Results:

Over 10 years, AIDSVu.org has used an expanded number of data sources and has progressively provided HIV surveillance and related data at finer geographic levels, with current data resources providing HIV prevalence data down to the census tract-level in many of the largest US cities. Data are available at the county-level in 48 US states, and at the ZIP Code-level in more than 50 US cities. In 2019, nearly 600,000 unique users consumed AIDSVu data and resources, and HIV-related data and insights were disseminated through nearly 4,000,000 social media posts. Since AIDSVu’s inception, at least 240 peer reviewed publications have used AIDSVu data for analyses or referenced AIDSVu resources. Data uses have included targeting of HIV testing programs, identifying areas with inequitable PrEP uptake, including maps and data in academic and community grant applications, and strategically selecting locations for new HIV treatment and care facilities to serve high-need areas.

Conclusions:

Surveillance data is information for action, and AIDSVu translates high-quality, population-based data about the US HIV epidemic and makes that information available in formats beyond the usual tabular presentation. Bringing public health surveillance data to an online resource is democratization of data, and presenting information about the HIV epidemic in more visual formats allows diverse stakeholders to engage with, understand and use these important public health data to inform public health decision making.


 Citation

Please cite as:

Sullivan PS, Woodyatt C, Koski C, Pembleton E, McGuinness P, Taussig J, Ricca A, Luisi N, Mokotoff E, Benbow N, Castel AD, Do AN, Valdiserri RO, Bradley H, Jaggi C, O'Farrell D, Filipowicz R, Siegler AJ, Curran J, Sanchez TH

A Data Visualization and Dissemination Resource to Support HIV Prevention and Care at the Local Level: Analysis and Uses of the AIDSVu Public Data Resource

J Med Internet Res 2020;22(10):e23173

DOI: 10.2196/23173

PMID: 33095177

PMCID: 7654504

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© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.