Accepted for/Published in: JMIR Research Protocols
Date Submitted: Mar 30, 2020
Date Accepted: Sep 17, 2020
A Patient-Centered Asthma Management Communication Intervention for Rural Latino Children
ABSTRACT
Background:
Rural Latino children with asthma suffer high rates of uncontrolled asthma symptoms, emergency department visits, and repeat hospitalizations. This vulnerable population must negotiate micro and macro level challenges that impact asthma management, including language barriers, primary care access, parental time off from work, insurance coverage, distance from specialty sites, and documentation status. There are few proven interventions that address asthma management embedded within this unique context.
Objective:
Using a bio-ecological approach, we will determine the feasibility of a patient-centered collaborative program between rural Latino children with asthma and their families, school based nursing, and primary care providers, facilitated by the use of a smart phone based mobile application (mobile app) with a Spanish-language interface. We hypothesize that improving communication through a collaborative, patient-centered intervention will improve asthma management, empower the patient and family, decrease outcome disparities, and decrease direct and indirect costs.
Methods:
The specific aims of this study include: 1) Produce and validate a Spanish translation of an existing asthma management app and evaluate its usability with Latino parents of children with asthma;2) Develop and evaluate a triadic, patient-centered asthma intervention preliminary protocol, facilitated by the bilingual mobile app validated in aim 1; and 3) Investigate the feasibility of the patient-centered asthma intervention from aim 2 using a wait list randomized control trial (RCT) to investigate the effects of the intervention on school days missed and medication adherence.
Results:
Mobile app translation, initial usability testing, and app software refinement was completed in 2019. Analysis is in process. Preliminary protocol testing is underway; we anticipate the waitlist RCT, using the refined protocol developed in Aim 2, will commence in fall 2020.
Conclusions:
Tailored, technology-based solutions have the potential to successfully address issues affecting asthma management including communication barriers, accessibility issues, medication adherence, and suboptimal technological interventions.
Citation
Request queued. Please wait while the file is being generated. It may take some time.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.