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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Nov 12, 2019
Open Peer Review Period: Nov 12, 2019 - Jan 7, 2020
Date Accepted: Dec 17, 2020
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study

Hager A, Brommels M, Salomonsson S, Lindblad S

Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study

J Med Internet Res 2021;23(1):e16842

DOI: 10.2196/16842

PMID: 33464212

PMCID: 7854041

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Design of a conceptual model for knowledge commons in the patient world arena: A case study approach

  • Andreas Hager; 
  • Mats Brommels; 
  • Stina Salomonsson; 
  • Staffan Lindblad

ABSTRACT

Background:

The rapidly developing opportunities for better individual health in long term conditions continue to overwhelm the delivery shortcomings of the current health care system.

Objective:

To present a conceptual model by which novel health technologies could be introduced and evaluated through knowledge commons, with special attention to protect personal real-life data and information flows between the stakeholders involved.

Methods:

The model is developed from a real-life case by applying the theory of knowledge commons on existing examples successfully improving health outcomes from new health technologies.

Results:

The presented conceptual model demonstrates how real time use of data obtained from patients and professional providers can be enabled and how this improves health outcomes in interaction with health technologies, i.e. pharmaceuticals, devices, procedures and organizational systems. Analyses of these data can inform additional stakeholders to optimize individual and group health, to improve care and the effectiveness of systems and to generate new knowledge, future opportunities and improved implementation on a population-based level.

Conclusions:

We propose the patient as the core agent when introducing and evaluating novel health technologies and for enabling collaborative knowledge-based co-production of health among involved stakeholders.


 Citation

Please cite as:

Hager A, Brommels M, Salomonsson S, Lindblad S

Sharing Patient-Controlled Real-World Data Through the Application of the Theory of Commons: Action Research Case Study

J Med Internet Res 2021;23(1):e16842

DOI: 10.2196/16842

PMID: 33464212

PMCID: 7854041

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