Accepted for/Published in: Journal of Medical Internet Research
Date Submitted: Oct 9, 2019
Date Accepted: Jan 26, 2020
E-Exercise haemophilic arthropathy: development of a blended physiotherapy intervention
ABSTRACT
Background:
Joint bleeds are the hallmark of haemophilia, leading to a disabling haemophilic arthropathy (HA). Exercise programs are frequently used to improve physical functioning in persons with HA. As haemophilia is a rare disease, regular physiotherapy sessions with an experienced physiotherapist in the field of haemophilia are not feasible for many patients. Blended care is an innovative opportunity to support patients at home in performing the advised physical activity behaviour and exercises and in providing information.
Objective:
The aim of the current study was to develop a blended physiotherapy intervention for persons with HA.
Methods:
E-Exercise HA was developed in co-creation with physiotherapists, patients, developers and researchers. The content of e-Exercise HA was compiled using the first three steps of the CeHRes-roadmap model (contextual inquiry, value specification and design) including 1) experience with the development of previous blended physiotherapy interventions, 2) a literature search, and 3) focus groups.
Results:
a 12 weeks blended intervention was developed, integrating face-to-face physiotherapy with an online application. The intervention consists of information modules for patients and information modules for physiotherapists, a graded activity program using a self-chosen activity and personalized video-supported exercises. Information modules consist of text blocks, videos and reflective questions. Patients can receive pop-ups as a reminder and give feedback on the performance of prescribed activities.
Conclusions:
a blended physiotherapy intervention for persons with HA was developed, including information modules, a graded activity program and personalized exercises. Clinical Trial: n.a.
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