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Accepted for/Published in: JMIR Formative Research

Date Submitted: Dec 20, 2018
Open Peer Review Period: Dec 31, 2018 - Feb 25, 2019
Date Accepted: Aug 21, 2019
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study

Vasilica C, Brettle A, Ormandy P

A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study

JMIR Form Res 2020;4(1):e13207

DOI: 10.2196/13207

PMID: 32012040

PMCID: 7011121

Co-designing social media interventions to satisfy information needs and improve outcomes in patients: The Greater Manchester Kidney Information Network (GMKIN)

  • Cristina Vasilica; 
  • Alison Brettle; 
  • Paula Ormandy

ABSTRACT

Background:

The number of people living with a long-term condition is set to increase in England and globally. The rise of social media enables patient networking, communication and information sharing, thus bringing significant opportunities in terms of satisfying information need and positive outcomes within the healthcare arena, particularly for those with long-term conditions (LTC).

Objective:

This paper explores the creation and use of a co-designed online network using a range of social media platforms to meet the health information needs and improve health and social outcomes in a group of patients with a LTC.

Methods:

Longitudinal in-depth study involving: A person-centred approach and co-creation of a moderated platform with Chronic Kidney Disease (CKD) patients and specialist kidney health practitioners; observation of platform use; 14 self-efficacy surveys (baseline and 6 months); 14 semi-structured interviews (at baseline and 6 months).

Results:

Multiple platforms were needed to engage patients at different levels, which contributed to information generation. This satisfied information need and triggered positive health and social outcomes. Satisfaction of information needs through social engagement influenced self-efficacy (in the majority of participants) and better self-care and management of illness. Unique to this study, social outcomes were identified, which included seeking employment and an increase in social capital.

Conclusions:

A co-created, multiplatform social media intervention has the potential to meet patient information needs and improve health and social outcomes in a sustainable manner.


 Citation

Please cite as:

Vasilica C, Brettle A, Ormandy P

A Co-Designed Social Media Intervention to Satisfy Information Needs and Improve Outcomes of Patients With Chronic Kidney Disease: Longitudinal Study

JMIR Form Res 2020;4(1):e13207

DOI: 10.2196/13207

PMID: 32012040

PMCID: 7011121

Per the author's request the PDF is not available.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.