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Accepted for/Published in: Journal of Medical Internet Research

Date Submitted: Jul 31, 2018
Open Peer Review Period: Aug 3, 2018 - Sep 28, 2018
Date Accepted: Feb 10, 2019
(closed for review but you can still tweet)

The final, peer-reviewed published version of this preprint can be found here:

Understanding User Experience: Exploring Participants’ Messages With a Web-Based Behavioral Health Intervention for Adolescents With Chronic Pain

Chen AT, Swaminathan A, Kearns WR, Alberts NM, Law EF, Palermo TM

Understanding User Experience: Exploring Participants’ Messages With a Web-Based Behavioral Health Intervention for Adolescents With Chronic Pain

J Med Internet Res 2019;21(4):e11756

DOI: 10.2196/11756

PMID: 30985288

PMCID: 6487347

Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.

Understanding User Experience: Exploring Participants’ Messages With a Web-Based Behavioral Health Intervention for Adolescents With Chronic Pain

  • Annie T Chen; 
  • Aarti Swaminathan; 
  • William R Kearns; 
  • Nicole M Alberts; 
  • Emily F Law; 
  • Tonya M Palermo

Background:

Delivery of behavioral health interventions on the internet offers many benefits, including accessibility, cost-effectiveness, convenience, and anonymity. In recent years, an increased number of internet interventions have been developed, targeting a range of conditions and behaviors, including depression, pain, anxiety, sleep disturbance, and eating disorders. Human support (coaching) is a common component of internet interventions that is intended to boost engagement; however, little is known about how participants interact with coaches and how this may relate to their experience with the intervention. By examining the data that participants produce during an intervention, we can characterize their interaction patterns and refine treatments to address different needs.

Objective:

In this study, we employed text mining and visual analytics techniques to analyze messages exchanged between coaches and participants in an internet-delivered pain management intervention for adolescents with chronic pain and their parents.

Methods:

We explored the main themes in coaches’ and participants’ messages using an automated textual analysis method, topic modeling. We then clustered participants’ messages to identify subgroups of participants with similar engagement patterns.

Results:

First, we performed topic modeling on coaches’ messages. The themes in coaches’ messages fell into 3 categories: Treatment Content, Administrative and Technical, and Rapport Building. Next, we employed topic modeling to identify topics from participants’ message histories. Similar to the coaches’ topics, these were subsumed under 3 high-level categories: Health Management and Treatment Content, Questions and Concerns, and Activities and Interests. Finally, the cluster analysis identified 4 clusters, each with a distinguishing characteristic: Assignment-Focused, Short Message Histories, Pain-Focused, and Activity-Focused. The name of each cluster exemplifies the main engagement patterns of that cluster.

Conclusions:

In this secondary data analysis, we demonstrated how automated text analysis techniques could be used to identify messages of interest, such as questions and concerns from users. In addition, we demonstrated how cluster analysis could be used to identify subgroups of individuals who share communication and engagement patterns, and in turn facilitate personalization of interventions for different subgroups of patients. This work makes 2 key methodological contributions. First, this study is innovative in its use of topic modeling to provide a rich characterization of the textual content produced by coaches and participants in an internet-delivered behavioral health intervention. Second, to our knowledge, this is the first example of the use of a visual analysis method to cluster participants and identify similar patterns of behavior based on intervention message content.


 Citation

Please cite as:

Chen AT, Swaminathan A, Kearns WR, Alberts NM, Law EF, Palermo TM

Understanding User Experience: Exploring Participants’ Messages With a Web-Based Behavioral Health Intervention for Adolescents With Chronic Pain

J Med Internet Res 2019;21(4):e11756

DOI: 10.2196/11756

PMID: 30985288

PMCID: 6487347

Per the author's request the PDF is not available.

© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.