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Currently accepted at: Journal of Medical Internet Research

Date Submitted: Jun 22, 2018
Open Peer Review Period: Jun 25, 2018 - Aug 20, 2018
Date Accepted: Nov 3, 2018
(closed for review but you can still tweet)

This paper has been accepted and is currently in production.

It will appear shortly on 10.2196/11371

The final accepted version (not copyedited yet) is in this tab.

The final, peer-reviewed published version of this preprint can be found here:

Design and development of a person-centered patient portal using participatory stakeholder co-design

Kildea J, Battista J, Cabral B, Hendren L, Herrera D, Hijal T, Joseph A

Design and development of a person-centered patient portal using participatory stakeholder co-design

J Med Internet Res 2019;21(2):e11371

DOI: 10.2196/11371

PMID: 30741643

PMCID: 6388099

Design and development of a person-centered patient portal using participatory stakeholder co-design

  • John Kildea; 
  • John Battista; 
  • Briana Cabral; 
  • Laurie Hendren; 
  • David Herrera; 
  • Tarek Hijal; 
  • Ackeem Joseph

ABSTRACT

Background:

Patient portals are increasingly accepted as part of standard medical care. However, to date most patient portals provide just passive access to medical data. The use of modern technology such as smartphones and data-personalization algorithms offers the potential to make patient portals more person-centered and enabling. 

Objective:

The objective of this paper is to share our experience in designing and developing a person-centered patient portal following a participatory stakeholder co-design approach.

Methods:

Our stakeholder co-design approach comprised six core elements: (1) equal co-leadership including a patient, (2) patient preference determination, (3) security, governance and legal input, (4) user evaluation and feedback, (5) continuous staff input, and (6) end-user testing. We incorporated person-centeredness by recognizing that patients should decide for themselves their level of medical data access, all medical data should be contextualized with explanatory content, and patient educational material should be personalized and timely.

Results:

Using stakeholder co-design, we built, and are currently pilot-testing, a person-centered patient portal smartphone app called Opal.

Conclusions:

Inclusion of all stakeholders in the design and development of patient-facing software can help ensure that the necessary elements of person-centeredness, clinician acceptability, and informatics feasibility are achieved. Clinical Trial: n/a


 Citation

Please cite as:

Kildea J, Battista J, Cabral B, Hendren L, Herrera D, Hijal T, Joseph A

Design and development of a person-centered patient portal using participatory stakeholder co-design

Journal of Medical Internet Research. (forthcoming/in press)

DOI: 10.2196/11371

URL: https://preprints.jmir.org/preprint/11371

PMID: 30741643

PMCID: 6388099

Download Accepted Manuscript PDF

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