Accepted for/Published in: JMIR Research Protocols
Date Submitted: May 30, 2018
Open Peer Review Period: May 30, 2018 - Aug 29, 2018
Date Accepted: Feb 7, 2019
(closed for review but you can still tweet)
Cascade Monitoring in Multidisciplinary Adolescent HIV Care Settings
ABSTRACT
Background:
Past research shows that youth living with HIV (YLH) are not as engaged in the HIV treatment cascade as other HIV positive populations. To achieve the health benefits of rapid and wide spread testing and advanced pharmacologic treatment, YLH must be fully engaged in every stage of the treatment cascade. Cascade Monitoring provides an opportunity to assess the youth care cascade, including engagement in care and when youth commonly drop-out of care, across 10 clinical sites in the United States.
Objective:
Examine the trends in treatment cascade, including whether patients are receiving antiretroviral therapy, adhering to regimens, attending care appointments, and maintaining suppressed viral loads, in order to guide the new protocol development and to facilitate community engagement.
Methods:
De-identified electronic health records (EHR) data of YLH, aged 15-24, will be collected annually (2017-2022) from 10 Adolescent Medicine Trials Network clinical sites, resulting in patient data from 2016 to 2021. This data will be transferred and stored using Dropbox Business, a HIPAA compliant site, and then analyzed by the Analytic Core.
Results:
This study was launched on December 4th, 2017 to 10 clinical sites, with 2016’s EHR data due on January 31st, 2017. Seven sites electronically uploaded their EHR data and 3 sites requested extensions.
Conclusions:
This study will provide a platform to determine how YLH across the nation progress through or drop out of the HIV treatment cascade. It will also provide a foundation for assessing impact of Scale It Up projects on treatment cascade outcomes.
Citation
Per the author's request the PDF is not available.
Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.