Currently accepted at: JMIR Research Protocols
Date Submitted: Nov 20, 2025
Date Accepted: Jul 17, 2026
This paper has been accepted and is currently in production.
It will appear shortly on 10.2196/88171
The final accepted version (not copyedited yet) is in this tab.
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
Caring for Patients with Heart Failure: A Mixed-Method Pilot Study Protocol Assessing Needs of Minoritized Caregivers in East Harlem and Inwood.
ABSTRACT
Background:
Heart failure is a public health issue projected to impact more than 8 million Americans by 2030. As the disease progresses, patients with heart failure rely heavily on family caregivers. However, the demand and intensity of caregiving tasks results in physical and psychological consequences for family caregivers.
Objective:
To describe a research protocol designed to evaluate the feasibility of a mixed-method study aiming to assess the emotional wellbeing of minoritized caregivers of patients with heart failure.
Methods:
Our pilot study follows a complementary mixed-method design incorporating photovoice, focus group (QUAL), and survey data (QUANT). The target population are unpaid caregivers identifying as Hispanic and/or Black and living in Inwood and East Harlem in New York City.
Results:
As of September 2025, we recruited seven caregivers. The recruitment process started in June 2025 and we project its completion by Spring 2026.
Conclusions:
This protocol describes a complementary mixed-method pilot study assessing the feasibility of a culturally-centered study evaluating the impact of care preparedness on caregivers’emotional well-being (benefit finding, thriving). The study findings will provide valuable knowledge regarding the feasibility and development of interventions for caregivers of patients with heart failure. Clinical Trial: Not applicable
Citation
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Copyright
© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.