Previously submitted to: JMIR AI (no longer under consideration since Dec 16, 2025)
Date Submitted: Dec 25, 2024
Warning: This is an author submission that is not peer-reviewed or edited. Preprints - unless they show as "accepted" - should not be relied on to guide clinical practice or health-related behavior and should not be reported in news media as established information.
AI and the Commodification of Health Data: Examining Participants' Perceptions of Data as an Economic Asset in Health Tech Ecosystems
ABSTRACT
Artificial Intelligence (AI) is transforming healthcare service delivery through predictive analytics, precision medicine, and enhanced diagnostics, yet the commodification of health data presents complex ethical and social challenges. This study explores perceptions of health data commodification within AI-driven healthcare systems, focusing on Saudi Arabia's rapidly evolving digital healthcare landscape. Using a mixed-methods approach, the study surveyed and conducted in-depth interviews with 42 patients, 8 healthcare professionals, 3 insurance representatives, and 4 AI experts across themes of data privacy, perceived benefits of AI and perspectives on data commodification. Findings reveal that 61.90% patients view health data as a personal property, while 59.50% feel a lack of control over how their data is used. A deep trust deficit was evident, with 50% expressing low trust in AI systems to protect their privacy, especially among the older cohorts. However, financial incentivization strongly influenced willingness to share data, with 81% agreeing to share data if compensation is provided. Additionally, 64.30% agreed that healthcare providers should sell anonymized data to tech companies, provided safeguards are in place. These insights underscore the need for robust regulatory frameworks prioritizing informed consent, transparency, and ethical governance. The study emphasizes patient-centric policies, equitable compensation models, enhanced training and awareness programmes, and inclusive practices to build trust and ensure responsible AI deployment. By addressing these challenges, policymakers can align innovation with equity, privacy, and ethical healthcare delivery principles.
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© The authors. All rights reserved. This is a privileged document currently under peer-review/community review (or an accepted/rejected manuscript). Authors have provided JMIR Publications with an exclusive license to publish this preprint on it's website for review and ahead-of-print citation purposes only. While the final peer-reviewed paper may be licensed under a cc-by license on publication, at this stage authors and publisher expressively prohibit redistribution of this draft paper other than for review purposes.